About SMA Europe

SMA Europe is an umbrella organisation, founded in 2006, which includes Spinal Muscular Atrophy (SMA) patient and research organisations from across Europe.

SMA Europe is a non-profit umbrella organisation which consists of 13 SMA patient and research organisations from 11 countries across Europe.

Our members differ in terms of how long they have been established, in size and also in scope. SMA Europe is staffed by one person.

The SMA Europe Board meets on a monthly basis and currently consists of 20 members.

Our aims are:

  • to provide a framework to stimulate collaboration,
  • accelerate translational research pathways in SMA,
  • promote patient care.

Co-operation between these European organisations is meant to enhance and support the existing efforts of each association by identifying areas for collaboration that are mutually advantageous:

  • to improve the quality of life of individuals with Spinal Muscular Atrophy,
  • to promote the interests of SMA patients in European health policy;
  • to raise awareness of Spinal Muscular Atrophy (SMA) with the general public, healthcare practitioners, scientists and industry;
  • to identify, develop, promote and implement the best practice for SMA;
  • to promote and sustain scientific and medical research in all fields of Spinal Muscular Atrophy;
  • to increase collaboration between member countries.