SMA Newsroom

Nov 29, 2022

Thank you for supporting those who have been affected by the war in Ukraine!

SMA Europe is extremely grateful for all your donations aimed at supporting those who have been affected by the war in Ukraine. Members of our community, towards whom we feel an overwhelming responsibility, are, as you can imagine, deeply affected by the war in Ukraine. SMA Europe is committed to help them and to do so, we are supporting initiatives that seek to fill gaps in patient needs.

Nov 29, 2022

Interview with Olga (Chernivtsi, Ukraine)

Meet Olga!

She is an Ukrainian SMA patient. Olga lives in Chernivtsi, a city located in west Ukraine.

Nov 24, 2022

European Day of Persons with Disabilities

Meet Lassi! Lassi is a delegate for SMA Finland.

On this European Day of Persons with Disabilities 2022, Lassi speaks about the challenges that different countries face, and the necessity for Europe to be united while ensuring that access to treatment is universal.

All together, one goal.

15th Anniversary.

ResearchNov 21, 2022

New publication: Validation of a Set of Instruments to Assess Patient- and Caregiver-Oriented Measurements in Spinal Muscular Atrophy.

Validation of a Set of Instruments to Assess Patient- and Caregiver-Oriented Measurements in Spinal Muscular Atrophy: Results of the SMA-TOOL Study.

Outcome measures traditionally used in spinal muscular atrophy (SMA) clinical trials are inadequate to assess the full range of disease severity. The aim of this study was to assess the psychometric properties of a set of existing questionnaires and new items, gathering information on the impact of SMA from the patient and caregiver perspectives.