We are supported by a Scientific Advisory Board (SAB), composed of an international group of neuroscientists and neurologists with particular expertise in Spinal Muscular Atrophy research. The SAB advises us on research grant applications and clinical trials initiatives which aim to:
- increase our understanding of the mechanisms of spinal muscular atrophy, in particular, understanding the SMN complex as it relates to the natural history of the disease,
- increase our understanding of the natural history of SMA,
- develop potential new therapies,
- address bottlenecks which impair rapid transition from Basic Research to the Clinics (e.g.: Outcome measures, biomarkers, administration route of potential therapeutics)”
SMA Europe SAB & scientific administrators
The SAB is supported by 2 scientific administrators, who jointly manage the Call for Research Proposals as well as other scientific initiatives:
- Alexandre Méjat, AFM, France – PhD in molecular and cellular biology by training, Alexandre has been working on neuromuscular junction defects and Emery Dreifuss muscular dystrophy in France and USA. He led a research group in Lyon for 8 years before becoming Scientific International Affairs manager for AFM Telethon.
- Vanessa Christie-Brown – SMA Europe Coordinator – Vanessa read Experimental Psychology and later Immunology at University. She worked as a research scientist in the field of immunology, initially at The Royal Postgraduate Medical School (Hammersmith Hospital) and later at Imperial College. Vanessa then worked for The SMA Trust in the UK for 7 years as Research Coordinator and became SMA Europe Coordinator in May 2014.