“There is no more time to waste for babies born with SMA – newborn screening programmes for SMA in all European countries no later than 2025”
Join us at this virtual event on:
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The European Alliance for Newborn Screening in Spinal Muscular Atrophy (led by SMA Europe) demands that by no later than 2025, newborn screening programmes in all European countries include a test for spinal muscular atrophy for all newborn children.
To help achieve that goal and encourage different countries to approve SMA NBS, the Alliance is proud to announce the publication of the Whitepaper on the need for newborn screening for SMA.
The Whitepaper summarises the major reasoning for introducing SMA newborn screening. It is intended to inform a systematic dialogue in the healthcare systems in Europe to help foster the introduction of SMA Newborn Screening for all children in Europe.
Join us on Friday 26 March from 12:00-13:00 CET as we officially launch the Whitepaper to the public with members from the SMA NBS Alliance, SMA Europe member organisations, policymakers, and other stakeholders.
Questions? Please email [email protected]
9th – 11th February 2022
Registration is not yet open. We will share the link in due course.
SMA Europe will hold its 3rd congress on SMA. More information will be available soon.