The Daily Life Study is now LIVE
Have you ever wondered how the accessibility of your environment, your treatment status, or your sleep quality impact the way you are feeling? Why are some days easier than others? Why are some moments of the day or week more challenging?
You can help us find out! You will be part of an innovative study that collects multiple short questionnaires every day for 10 days to capture how your moods and physical well-being change in your day-to-day life.
We know that the well-being and quality of life of people living with SMA are impacted by much more than merely motor function. This study will capture how different daily life factors relate to one another and, in turn, how this affects your well-being. Understanding the complex factors that positively or negatively impact your real life, every day, we will be better able to develop tools to measure outcomes that are relevant to you!
The study is now available in English and participation is open to any person with SMA in Europe. To participate, you need to be 16 years old or older, own a smartphone, and speak intermediate English.
To learn more and sign up, please send an email to [email protected] or visit our website!
All together. One goal.