News

The purpose of SMA Europe is to provide a framework to stimulate collaboration and accelerate translational research pathways in SMA and promote patient care.

  1. Our NBS Alliance Welcomes New Member

    On 22 June 2021, ImmunoIVD officially joined the European Alliance for Newborn Screening in SMA as our 13th Member Company. Our European Alliance for Newborn Screening in SMA demands that by 2025, newborn screening programmes in all European countries include a test for spinal muscular atrophy for all newborn children. ImmunoIVD is a Swedish company […]

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  2. 28 June 2021 – first international neonatal screening day!

    Join us in celebrating! Maarssen, Netherlands; Brussels, Belgium; Delft, Netherlands. The first International Neonatal¹ Screening Day (INSD) provides a unique opportunity to celebrate the vision of those who have pioneered and expanded neonatal screening programmes and will, in turn, encourage a new generation of doctors, scientists and policy makers to extend these benefits to more […]

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  3. Alliance strives to bridge the newborn screening gap to include SMA!

    It’s time for Europe to bridge the newborn screening gap and include spinal muscular atrophy!   The European Alliance for Newborn Screening in Spinal Muscular Atrophy calls upon the government of Europe to include a test for spinal muscular atrophy in national newborn screening programmes.   Worldwide newborn screening projects and programmes for SMA clearly […]

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  4. Join us for the launch of the SMA NBS Alliance Whitepaper and Expert Roundtable!

    “There is no more time to waste for babies born with SMA – newborn screening programmes for SMA in all European countries no later than 2025” Join us for this virtual event on: When? 26 March 2021 between 12:00–13:00 CET Where? Online through Webex: https://de308142546.my.webex.com/de308142546.my/j.php?MTID=md6a8d7e9e3f65923a483ac5a32a8d39d (no registration required) Access code: 181 720 9509 Password: nbs2021 […]

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