News

The purpose of SMA Europe is to provide a framework to stimulate collaboration and accelerate translational research pathways in SMA and promote patient care.

  1. Alliance strives to bridge the newborn screening gap to include SMA!

    It’s time for Europe to bridge the newborn screening gap and include spinal muscular atrophy!   The European Alliance for Newborn Screening in Spinal Muscular Atrophy calls upon the government of Europe to include a test for spinal muscular atrophy in national newborn screening programmes.   Worldwide newborn screening projects and programmes for SMA clearly […]

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  2. Join us for the launch of the SMA NBS Alliance Whitepaper and Expert Roundtable!

    “There is no more time to waste for babies born with SMA – newborn screening programmes for SMA in all European countries no later than 2025” Join us for this virtual event on: When? 26 March 2021 between 12:00–13:00 CET Where? Online through Webex: https://de308142546.my.webex.com/de308142546.my/j.php?MTID=md6a8d7e9e3f65923a483ac5a32a8d39d (no registration required) Access code: 181 720 9509 Password: nbs2021 […]

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  3. Our NBS Alliance welcomes twelve members

    We are very pleased to announce that, in addition to the 23 national SMA patient organisations that form SMA Europe, our NBS Alliance has been joined by 12 organisations, including other patient groups, a university and pharmaceutical comapnies. On 31st August 2020, SMA Europe launched a new European Alliance for Newborn Screening (NBS) in Spinal […]

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