The purpose of SMA Europe is to provide a framework to stimulate collaboration and accelerate translational research pathways in SMA and promote patient care.

  1. A New Team to Deliver our Ambitious New Strategy

    SMA Europe announces a series of appointments to deliver the ambitious strategy announced earlier this summer. This new strategy consists of 5 pillars of activity: Research; Therapy & Care; Health Care Systems, Policy & Access; Capacity Building; Communications and Outreach. Raquel Castro joins us as Senior Operations Manager to run SMA Europe’s secretariat, develop processes […]


  2. SMA My Way: stories on topics that matter most

    August is SMA Awareness month and to kick this off, we would like to showcase a great new, community-focused initiative called “SMA My Way“, which brings together the lived experiences of people across the world who live SMA THEIR way! This initiative was born as a result of a need highlighted by people living with […]


  3. SMA Europe rings the changes!

    SMA Europe held its Annual General Meetings virtually, between 10th and 12th June 2021. A five-year strategy was approved, containing exciting new projects and initiatives centred around 5 pillars: Research Therapy and care Healthcare systems, policy and access Capacity building Communication and outreach Importantly, elections were held for 4 out of 5 positions on the […]



    Come and join our dedicated team! To lead daily activities to ensure sustainability and adequate organisational process, SMA Europe, a non-for-profit umbrella organisation of European 23 national spinal muscular atrophy (SMA) patient and research associations across 22 European countries, is seeking an experienced Operations Manager. With unique insight and expertise, SMA Europe brings effective treatments […]