The purpose of SMA Europe is to provide a framework to stimulate collaboration and accelerate translational research pathways in SMA and promote patient care.

  1. Biogen provides information on upcoming Spinraza EU label

    In response to our request, Biogen has provided us with information and addressed our questions and concerns regarding the upcoming SPINRAZA (nusinersen) EU label (Prescribing information and Package Leaflet) update that will include information on the potential risk of hydrocephalus. All medicines are evaluated for the benefit they provide to patients as well as the […]


  2. Our 2018 – 2020 activities and initiatives

    In April this year, a new 2-year strategy was set and a new working structure established. Our new structure   Elections Presidency: Mencía de Lemus from our Spanish organisation, FundAME vice-Presidency: Nicole Gusset from our Swiss organisation, SMA Schweiz Treasury: Inge Schwersenz from our German organisation, DGM     Executive Committee As SMA Europe continues to grow, it […]