SMA Europe campaigns to improve the quality of life of people who live with SMA and to bring effective therapies to patients in a timely and sustainable way, as well as to encourage optimal patient care.
We do this in a variety of ways:
- We inform on patients’ expectations,
- We inform on the burden of living with the disease,
- We inform on the potential economic and societal benefits of stabilising or improving health conditions of the SMA population
- We provide important information that will inform the development of drugs which have the most meaningful effects to patients
Our position statements