SMA Europe campaigns to improve the quality of life of people who live with SMA and to bring effective therapies to patients in a timely and sustainable way, as well as to encourage optimal patient care.
We do this in a variety of ways:
We inform on patients’ expectations,
We inform on the burden of living with the disease,
We inform on the potential economic and societal benefits of stabilising or improving health conditions of the SMA population
We provide important information that will inform the development of drugs which have the most meaningful effects to patients