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Agenda

  1. Welcome and introduction by SMA Europe
  2. Opening remarks by Mr. Cyrus Engerer, Member of European Parliament, Malta
  3. Roundtable participants will discuss the importance of newborn screening for SMA:
    • Dr. Stelios Kympouropoulos, Member of European Parliament, Greece
    • Mrs. Marie-Christine Ouillade, Chair of SMA NBS Alliance Steering Committee, SMA Europe, AFM Telethon
    • Ms. Jana Popova, patient advocate with EAMDA, European Patients Forum
    • Professor Eduardo Tizzano, Head of Pediatrics and Director Department of Clinical and Molecular Genetics, Hospital Universitari Vall d’Hebron
  4. Video message from Ms. Claudia Gamon, Member of European Parliament, Austria

 

The event was moderated by Dr. Andreas Reimann, Co-founder and managing partner, admedicum