Publications

SMA Type 1 care guidelines – by country

02/01/2019
Description:

SMA Type 1 care guidelinesThe Netherlands

A new guideline which stipulates what the optimal care for children with SMA type 1 is with the arrival of new, disease-inhibiting medicines, has been published by Dutch neurologists.

 

Poland

Poland also has a guide, written by Chiara Mastella and translated from Italian into Polish.

Standards of Care in spinal muscular atrophy

03/06/2017
Description:

Audience: Patient Advocacy Organizations, Europe+

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