Publications

Exercise & muscle training for people with SMA

02/08/2021
Description:

This audio presentation has been developed in collaboration with Tina Duong, to help support families who, during the COVID-19 pandemic, might have less access to physiotherapy support. Tina is a research physical therapist at Stanford in the US, with over 15 years of clinical experience in evaluating, treating and supporting patients with neuromuscular disease.

 

 

Information about other topics

 

 

SMA Type 1 care guidelines – by country

02/01/2019
Description:

SMA Type 1 care guidelinesThe Netherlands

A new guideline which stipulates what the optimal care for children with SMA type 1 is with the arrival of new, disease-inhibiting medicines, has been published by Dutch neurologists.

 

Poland

Poland also has a guide, written by Chiara Mastella and translated from Italian into Polish.

Standards of Care in spinal muscular atrophy

03/06/2017
Description:

Audience: Patient Advocacy Organizations, Europe+

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