Roundtable discussion on the urgent need to include SMA in newborn screening programmes across Europe
26/03/2021
Description:
Agenda
- Welcome and introduction by SMA Europe
- Opening remarks by Mr. Cyrus Engerer, Member of European Parliament, Malta
- Roundtable participants will discuss the importance of newborn screening for SMA:
- Dr. Stelios Kympouropoulos, Member of European Parliament, Greece
- Mrs. Marie-Christine Ouillade, Chair of SMA NBS Alliance Steering Committee, SMA Europe, AFM Telethon
- Ms. Jana Popova, patient advocate with EAMDA, European Patients Forum
- Professor Eduardo Tizzano, Head of Pediatrics and Director Department of Clinical and Molecular Genetics, Hospital Universitari Vall d’Hebron
- Video message from Ms. Claudia Gamon, Member of European Parliament, Austria
The event was moderated by Dr. Andreas Reimann, Co-founder and managing partner, admedicum