The purpose of SMA Europe is to provide a framework to stimulate collaboration and accelerate translational research pathways in SMA and promote patient care.

SMA Europe is a non-profit organisation.

SMA Europe

The purpose of SMA Europe is to provide a framework to stimulate collaboration and accelerate translational research pathways in SMA and promote patient care.

SMA Europe is a non-profit organisation.

Latest News

06/07/2016

SMA standards of care - lay report of a workshop

A workshop on SMA standards of care, supported by the ENMC, together with SMA Europe, SMA Support UK, Cure SMA and the SMA Foundation, was held in February in Naarden, The Netherlands. This initiative gathered twenty-one clinical researchers from seven different countries (USA [7], UK [6], Italy [3], Germany [2], France [1], Sweden [1], Denmark […]

10/06/2016

Biogen & Ionis release update on the development of Nusinersen

Dear members of the SMA community, In response to your requests for information, we want to provide an update on the status of our investigational program and its direction to you and the many families around the world who are touched by SMA. Since our last community post, we have made important progress in moving […]

01/06/2016

New President and vice-President for SMA Europe announced

A new president and a new vice-President for SMA Europe have been elected. SMA Europe held elections for a new President, a new vice-President as well as for a Treasurer, at their annual meeting in April 2016. We are delighted to announce that: Our new President is┬áMarie-Christine Ouillade, Trustee of the Association Fran├žaise contre les […]

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