SMA Newsroom

ResearchMar 11, 2024

Community update from Biogen

We are pleased to share with you the latest Community Update from Biogen.

AdvocacyFeb 29, 2024

Today we launch "Care for adults living with SMA in Europe: a benchmarking report!

Today, on Rare Disease Day 2024, we are very excited to launch: "Care for adults living with SMA in Europe: a benchmarking report."

OtherDec 21, 2023

Season's Greetings 2023!

We want to share with you our Season's Greetings for 2023!

This was an exciting year with so much happening! So many people joining our projects and initiatives, and so much support and love we receive daily from all our SMA Community!

Dec 18, 2023

EUPESMA 2023 Survey is now rolling!

The Pan-European Survey on SMA and Clinical Trials is live!

What would you like to see in future clinical trials for SMA? 
Help us advocate for clinical trials that meet the needs of people living with SMA!