Today we launch "Care for adults living with SMA in Europe: a benchmarking report!
Today, on Rare Disease Day 2024, we are very excited to launch: "Care for adults living with SMA in Europe: a benchmarking report."
This report, for the first time, delivers a comprehensive evaluation of care and support provision for adults living with SMA in Europe, as well as individual country snapshots of performance against the different indicators.
It helps identify best practice examples, as well as common areas of weakness, ultimately leading to recommendations to improve care and the overall quality of life for adults living with SMA.
You can consult the report here: https://odysma.sma-europe.eu/adult-care
All together. One goal.