2025 Awareness Campaign
Connecting the Dots
The overall goal of the 2025 campaign is to enhance the importance of transdisciplinary and breakthrough research on Spinal Muscular Atrophy and bring together the SMA and research Community of SMA Europe.
The title of the campaign is “Connecting the Dots…” to enhance the ongoing connection and alignment within all undertaken by SMA Europe initiatives that end up in a solid future research agenda based on the SMA community’s real needs.
One of the core initiatives of SMA Europe, the 12th Call for Research Proposals, prioritises projects that address the needs of people living with SMA and highlight a distinct pathway to impactful outcomes, both in the short and long term.
This initiative will also bring scientists closer to the people who live with SMA. There is an ongoing need for them to understand spinal muscular atrophy not only from a lab perspective but also as a rare condition lived by real people. The impact it has on their everyday lives.
Our Song
SMArt Warriors
Written by-: Roli Rastogi
In life's vast canvas, we're all unique, like nature's art. Each one a masterpiece, with a place in every heart. We're not trapped by challenges, we stand with pride, With strong hearts and courage, side by side.
We are the SMArt warriors, standing tall and strong, Facing every challenge, where we belong.
Together, we rise, breaking barriers, we're one, Celebrating our differences, our unity spun. Though breathing might be hard, our spirits fly, With each breath, we reach for the sky so high.
We are the SMArt warriors, united in our quest, With strength and bravery, we face every test.
Though muscles might weaken, our spirit won't wane, Each step forward, our determination reigns.
Life's short, but every moment, we treasure dear, Finding joy in each moment, wiping every tear.
We are the SMArt warriors, strong in our might, Together, we'll overcome, shining bright.
For those in wheelchairs, wheels are our guide,
With courage as our compass, we stand side by side. Dreaming together, sharing our hopes and schemes, As one community, chasing shared dreams.
We are the SMArt warriors, our unity our power, Spreading love and hope, hour after hour.