Elevating the voice of people living with SMA

Check our European Patient Expectation Surveys

Creating a better world for all those living with SMA

Find out more about us

Ensuring no one is left behind

Get involved in OdySMA, a quest to access

Elevating the voice of people living with SMA

Check our European Patient Expectation Surveys

Creating a better world for all those living with SMA

Find out more about us

Research

Promoting and generating patient-relevant evidence to support evidence-based patient advocacy

Therapy

Ensuring the needs and wants of patients across Europe are taken into account during the entire drug development process

Healthcare

Generating evidence on the access situation to diagnosis, treatment and care in Europe

Latest News

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    SMA Europe initiatives

    Working to bring effective treatments and optimal care to everyone living with SMA

    OdySMA

    Revealing the 'quest to access' of people living with SMA

    NBS Alliance

    Making Newborn Screening for SMA a reality in all European countries

    Living with SMA

    Meet Victoria.

    A beautiful little girl from Switzerland with a shy smile and love for horses, who was diagnosed with SMA as a toddler.

    Follow her story...

    Call for Research Proposals

    SMA Europe runs a call for research proposals aimed at finding therapies for SMA or at elucidating the basic pathophysiological processes of the disease.

    Call for proposalsPreviously funded projects

    All together. One goal.

     

    Our members are national patient organisations led by people living with SMA and their families. Together, we are determined to make a positive difference to the lives of all those who are also living with SMA.

     

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    Patient Organisations

    23

    European Countries