Get Involved!

Take action

Support our work

Join us in creating a better world for all those living with SMA by taking any of the actions below.

For additional information on how you can support our work, please contact us at or at

Become a member

Our members are national patient organisations, led by people living with SMA and their families.

Partner with us

Collaborate with us on key issues to improve the lives of people with SMA and their families.

Join our team

Work together with our members, delegates, board, volunteers and staff to create a better world for all those living SMA.

Help us support the SMA community

Support our work to raise awareness of SMA and to bring effective treatments and optimal care to everyone living with SMA. 

Donate today

Keep in touch!

Be amongst the first to hear about our upcoming actions and events. 

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