Our Partners

Overview

Our partners

SMA Europe partners with the following European and international not-for-profit organisations to work on transversal issues to improve the lives of people with SMA and their families.

If you are interested in partnering with us, please contact us at secretariat@sma-europe.eu.

Cure SMA

Cure SMA is a US-based non-profit organisation that provides support to patients and families affected by spinal muscular atrophy (SMA) and funds and directs research leading the way to a cure for SMA. SMA Europe and Cure SMA work together on various research, treatment and care related priorities. 

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EURO-NMD

EURO-NMD is a European Reference Network (ERN) for the thematic grouping of rare neuromuscular diseases (NMDs). It unites 61 of Europe’s leading NMD clinical and research centres in 14 European Member States and includes highly active patient organisations. Several SMA Europe delegates are engaged in EURO-NMD, notably as members of its Ethics Committee and of its Motor Neuron Diseases Specialist Group. 

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European Medicines Agency

The European Medicines Agency (EMA) is a decentralised agency of the European Union (EU) responsible for the scientific evaluation, supervision, and safety monitoring of medicines in the EU. The EMA engages with a network of eligible organisations, including SMA Europe, ensuring that the needs and concerns of a wide range of patients and consumers are represented via direct contact with the Agency. 

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European Neuromuscular Centre

The European Neuromuscular Centre (ENMC) was founded by a group of European patient associations dedicated to bringing together leading researchers and clinicians from all over the world. The ENMC is unique to achieve this by financing and organising workshops on a range of important topics for all neuromuscular diseases. SMA Europe is an associate member of ENMC and supports the organisation of SMA related workshops.

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EURORDIS

EURORDIS is an alliance of over 900 rare disease patient organisations from more than 70 countries that work together to improve the lives of people living with a rare disease in Europe. By connecting patients, families and patient groups, as well as by bringing together all stakeholders, EURORDIS strengthens the patient voice and shapes research, policies and patient services. SMA Europe is a member of EURORDIS and of its Council of European Federations.

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SMA Foundation

The mission of the SMA Foundation is to accelerate the development of treatments for spinal muscular atrophy (SMA). Today, the SMA Foundation is a leading funder of SMA basic, translational, and clinical research worldwide, operating as a unique blend of non-profit, venture capital, and biotech entities. SMA Europe and the SMA Foundation work together on various treatment related priorities.

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