Since we became a member in 2017, the joint work of all the members has already yielded meaningful results at European level. And we have had the opportunity to establish contacts and interactions with key stakeholders, which help us to work more effectively in all areas, including those needed to solve the challenges of Russian patients and families.
Olga Germanenko, SMA Family Foundation Russia
Our members at a glance
Our members are national patient organisations, led by people living with SMA and their families, who put the voice of those living with SMA at the heart of everything they do. They advocate and campaign at national level while also engaging and influencing all stakeholders and decisions at European level, through SMA Europe.
Only through true representation of the SMA community will the voices of people living with SMA and their families be heard, and will their needs be met.
Patient-driven and willing to represent the SMA community of their country.
Committed to work together on common goals, to create a better world for all living with SMA in Europe. 
Financially and structurally transparent.
Our annual meetings bring our European SMA community together to discuss and work on key issues to advance early diagnosis, effective treatments and optimal care for people living with SMA.
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