Our members at a glance
- patient organisations
- common goal
All together. One goal.
Our members are national patient organisations, led by people living with SMA and their families, who put the voice of those living with SMA at the heart of everything they do. They advocate and campaign at national level while also engaging and influencing all stakeholders and decisions at European level, through SMA Europe.
Only through true representation of the SMA community will the voices of people living with SMA and their families be heard, and will their needs be met.
Our members are
- Patient-driven and willing to represent the SMA community of their country.
- Committed to work together on common goals, to create a better world for all living with SMA in Europe.
- Financially and structurally transparent.