EUESMA 2023 Survey Results
We’re thrilled to share the latest publication in SMA Europe’s One Goal editorial series!
This report is based on patient experience data from the pan-European EUPESMA survey, giving real insights into clinical trial participation and the community’s experience and expectations for the future.
Why it matters:
Our goal is to make sure patient perspectives directly shape the design and planning of future clinical trials.
Key highlights:
- Conducted in 51 countries and translated into 14 languages
- Counts on voices of people living with SMA, their parents, and caregivers
- Includes participants both with and without previous clinical trial experience
This survey was carried out in collaboration with Tilburg University (Netherlands) and supported by the Cure SMA Industry Collaboration.