SMA Newsroom

Nov 9, 2022

SMA Priority Setting Project

We launch SMA Priority Setting Project!

Help influence the future of research into spinal muscular atrophy (SMA). 

SMA Europe has set up a James Lind Alliance Priority Setting Partnership (JLA PSP) (https://www.jla.nihr.ac.uk/) to survey a range of people for their ideas on research uncertainties relating to SMA. In particular, we really want to hear from parents/carers or family members of people living with SMA, and from people with different lived experiences of having SMA themselves, as well as healthcare professionals who look after them. 

Tell us the questions you want answered by research via our survey, available in several languages. You can access them on the project's website.