SMAcademy learning opportunities & webinars

Webinars:

• Feb 2026: Present and Future of Gene Therapy, with Dr. Serge Braun. 
• Nov 2025: Modern Approaches to Managing Orthopaedic Challenges in SMA, with drs. Michail Kokkinakis and Luca Labianca. 
• Jan 2025: Understanding the new EU Joint Clinical Assessment and its possible implications, with Paolo Morgese and Tresia Bolt.
• Dec 2024: SMA Newborn Screening White Paper Update How Far We’ve Come.
• Nov 2024: Sexual and Reproductive Health in People Living with SMA, with Dr. Lorelei Thornburg and Dr. Natan Bar Chama.
• July 2024: SMN function in adults living with SMA: current and future perspectives, with Prof. Tom Gillingwater.
• April 2024: Are SMA registries suitable to be used for regulatory decisions? Results of a pilot study conducted by EMA, with Prof. Laurent Servais, Neil Bennet, and Mencía de Lemus,with Prof. Laurent Servais, Neil Bennet, and Mencía de Lemus.
• April 2024: The evolving of SMA genetics in the new therapeutic era, with Prof. Eduardo Tizzano.

Workshops:

• May 2025: Design, launch, impact: how to run a successful awareness campaign, with Emilia Debska. 
• March 2025: Empowering Advocacy and driving change in adult SMA care: Leveraging the "Care for adults living with SMA in Europe" benchmarking report, with Anne-Pierre Pikaert (part 1, part 2)