SMA Patient Advocate Training
SMA Patient Advocate Training Programme

SMA Europe’s SMA Patient Advocate Training is a unique, SMA-focused learning programme designed to provide patient advocates with essential knowledge and skills to represent people living with spinal muscular atrophy (SMA).
This programme equips SMA patient advocates from all around the globe with the tools they need to act as informed partners in patient engagement collaborations with a wide range of stakeholders, from industry to clinicians, governments and beyond.
The training is structured in five self-paced e-learning units that cover a comprehensive overview of SMA, patient advocacy principles, the medicines lifecycle, healthcare systems and access pathways, and key challenges in the SMA landscape.
Upon completion of all dedicated modules, trainees receive the SMA Patient Advocate Training Certificate issued by SMA Europe, as proof of their expertise.
Stay tuned!
Programme structure:
-
Module 1: Introduction to Patient Advocacy in SMA
-
Module 2: What is SMA?
-
Module 3: Medicines’ lifecycle
-
Module 4: Healthcare systems and access
-
Module 5: Critical issues in SMA (*in person)
Applications open: June 2026
Programme start for admitted trainees: September 2026