SMA Priority Setting Team

SMA Priority Setting

Meet our team

Vanessa Christie-Brown

PSP Lead

Carolina Pachecoy

Project Coordinator

Kristina Staley

Information Specialist

Suzannah Kinsella

JLA Chair

Véronique Van Assche (Belgium)

Patient Representative

Jana Popova (Bulgaria)

Patient Representative

Mia Meyers (UK)

Patient Representative

Jane Velkovski

Patient Representative

Olga Germanenko (Russian Federation)

Carer of a person living with SMA

Inge Schwersenz (Germany)

Carer of a person living with SMA

Kacper Rucinski (Poland)

Carer of a person living with SMA

Huub van Rijswijck (the Netherlands)

Carer of a person living with SMA

Anna Mayhew (UK)

Consultant Physiotherapist

Marianna Nordstrøm (Norway)

Clinical Dietitian

Katy Howarth (UK)

Highly Specialist Speech & Language Therapist (SaLT)

Jatin Pattni (UK)

Clinical Neuro-psychologist

Yuri Seliverstov (Ulm, Germany)

Neurologist

Nicole Gusset (Switzerland)

SMA Europe President & Advisor

Yasemin Erbas (Belgium)

SMA Europe vice-President & Advisor