SMA Newsroom

Jun 28, 2022

11th European Conference on Rare Diseases and Orphan Products: 27th June - 1st July

The ECRD is recognised globally as the largest, patient-led rare disease policy event in which collaborative dialogue, learning and conversation takes place, forming the groundwork to shape goal-driven rare disease policies and allow for important and innovative discussions on a national and an international level to take place.

We are very excited to be a part of the event. Nicole Gusset, Yasemin Erbas, Laura Gumbert, Vitaliy Matyushenko, Marie-Christine Ouillade, Evgeniya Vedernikova and Ferdinand Schmieder participate with their posters and research on different aspects related to Spinal Muscular Atrophy and our Community.

We are very grateful for their work and strongly believe that these kind of platforms are key in order to push for the policy change as well when it comes to sharing our knowledge and support each other.