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The purpose of SMA Europe is to provide a framework to stimulate collaboration and accelerate translational research pathways in SMA and promote patient care.

  1. Jane Velkovski, 11 year old disability advocate, speaks at the United Nations on World Children’s Day

    Jane VelkovskiToday is World Children’s Day and Jane Velkovski, 11-year-old disability advocate from North Macedonia, son of our member representative Denica Velkovska, joined UNICEF at a global summit at the United Nations’ Headquarters in New York where children and young people are leading a call to action to protect and promote child rights.

    The UNICEF summit is part of celebrations marking World Children’s Day which coincides this year with the 30th anniversary of the adoption of the Convention on the Rights of the Child, the most widely ratified human rights treaty in history.

    “I’m really excited and to be honest a little overwhelmed because this is a huge event. But I am also happy that I will be able to tell the whole world that everyone is equal and that people with disabilities can do the same things everyone else can. And even if they can’t, that doesn’t mean they can’t enjoy their lives,” said Jane Velkovski.

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