New publication: A seat, a voice, a vote: reimagining the role of SMA patient advocates in research and care by Rare Revolution Magazine.
We are delighted to invite you to read the latest "A seat, a voice, a vote: reimagining the role of SMA patient advocates in research and care” by Rare Revolution Magazine.
Rare Revolution Magazine has featured A seat, a voice, a vote: reimagining the role of SMA patient advocates in research and care written by Emma Bishop, interviewed with Christian Pfeuffer, patient expert, and Eva Stumpe, treasurer, SMA Europe and SMAcademy Advisory Board member.
At the 2026 Global SMAdvocacy Day in Budapest, 70 advocates from 45 organisations across 40 countries came together.
Through initiatives like SMAcademy, patient advocates are gaining the knowledge and tools to engage in research, policy, access to treatments and care.
Because advocacy today means more than being heard, it means having a seat, a voice, and a vote.
Huge thanks to Rare Revolution Magazine. Together, #WeAreOne.