This year, International Myology Congress was held for the 7th time, from September 12th to 15th, 2022. Researchers and therapists from all over the world gathered in Nice, France, to advance knowledge of neuromuscular diseases.
SMA Europe took part in this event and presented three posters:
- EUPESMA 2019 – European Patient Experience Survey in SMA to understand patient expectations towards therapeutic development in spinal muscular atrophy.
- EUPESMA 2021 – Physiotherapy and Nutrition: European Patient Expectation Survey in SMA to understand patient expectations towards physiotherapy and nutrition.
- The SMA Daily Life Study – an experience sampling study examining patient-centric outcomes in the daily lives of individuals living with SMA.