SMA Newsroom

Apr 4, 2023

SMA Parent Well-being Survey

How does caring for a child with SMA impact the lives of their parents? What influences the parents’ well-being, both in a positive and negative way?

The survey includes questions on well-being, stress and stressful situations, resilience, and parenting. Complete this survey today and help us to advocate for your well-being!

All together. One goal.


Who can participate: All parents of children who are living with SMA (also if your child is a teenager or an adult)

Language: English

Duration: 30 minutes

Country: all countries

Questions? Contact us at