Community Update Roche: EMA approval of the risdiplam tablet
We are pleased to share a community letter from Roche, announcing that the European Commission (EC) has approved a new, room- temperature stable tablet formulation of risdiplam.
SMA Newsroom
New publication: Spinal cord stimulation: A new perspective for SMA research by Rare Revolution Magazine.
We are delighted to invite you to read the latest Spinal cord stimulation: A new perspective for SMA research by Rare Revolution Magazine.
‘One Community. Shared Dreams’ Documentary Spotlight SMA Awareness Campaign
We are delighted to invite you to read the latest features from SMA News Today and Rare Revolution Magazine, showcasing our documentary that aims to raise awareness about the importance of research in Spinal Muscular Atrophy.
New partnership with EUPATI
We are thrilled to announce our collaboration with EUPATI, an organisation committed to educating and empowering patients and their advocates.