Mencía de Lemus, our Spanish delegate, has been appointed as a member of the Committee for Advanced Therapies, representing patients' organisations.

Listen to interview with Maria. She speaks to us from Ukraine about her reality, her story and her plans for when the war is over. 

Brussels, 8 February 2022 – The European Alliance for Newborn Screening for Spinal Muscular Atrophy (Alliance) won the 2022 Black Pearl Award in the category: “EURORDIS Company Award for Patient Engagement”.

The European Alliance for Newborn Screening for SMA organised a webinar for SMA Europe members on the topic of newborn screening techniques for SMA, which was covered from a variety of viewpoints.