SMA Newsroom

AdvocacyJul 26, 2022

Mencía de Lemus has beein appointed as a member of the Committee for Advanced Therapies at EMA.

Mencía de Lemus, our Spanish delegate, has been appointed as a member of the Committee for Advanced Therapies, representing patients' organisations.

OtherAdvocacyRare DiseasesUkraine May 27, 2022

News from Ukraine: Interview with Maria

Listen to interview with Maria. She speaks to us from Ukraine about her reality, her story and her plans for when the war is over. 

AdvocacyFeb 8, 2022

SMA Newborn Screening Alliance Wins EURORDIS Company Award for Patient Engagement

Brussels, 8 February 2022 – The European Alliance for Newborn Screening for Spinal Muscular Atrophy (Alliance) won the 2022 Black Pearl Award in the category: “EURORDIS Company Award for Patient Engagement”.

AdvocacyJan 24, 2022

European NBS Alliance Webinar on Newborn Screening Techniques for SMA

The European Alliance for Newborn Screening for SMA organised a webinar for SMA Europe members on the topic of newborn screening techniques for SMA, which was covered from a variety of viewpoints.