SMA Newsroom

OtherSep 19, 2022

News on positive developments for SMA newborn screening in Spain and Denmark

Last week, new positive news was announced by governments in Spain and Denmark.

Please see below to read more.

OtherAug 31, 2022

Message from Nicole: The end of SMA Awareness Month 2022

The SMA Awareness month is about to finish, and, in SMA Europe, we would like to thank all the organisations and our partners who decided to use this opportunity and increase awareness about SMA.

Watch Nicole's video to see more!

OtherNewslettersJun 21, 2022

Community letter from Novartis Gene Therapies June 2022

In this June 2022 community update, Novartis Gene Therapies shares the latest Gene Therapy Education Resources and provide clinical updates on completed, ongoing and upcoming Clinical Studies. 

For more information please see the link below.

OtherAdvocacyRare DiseasesUkraine May 27, 2022

News from Ukraine: Interview with Maria

Listen to interview with Maria. She speaks to us from Ukraine about her reality, her story and her plans for when the war is over.