SMA Europe is shocked and devastated by the situation in Ukraine. SMA Europe stands in solidarity with all people suffering from the consequences of the war.
We are delighted to inform you that the European Alliance for Newborn Screening for SMA has been granted the EURORDIS Company Award for Patient Engagement which recognises the collaborative effort of the companies involved in ensuring that newborn screening (NBS) programmes in all European countries diagnose all newborn children with SMA.
SMA Europe announces a series of appointments to deliver the ambitious strategy announced earlier this summer. This new strategy consists of 5 pillars of activity: Research; Therapy & Care; Health Care Systems, Policy & Access; Capacity Building; Communications and Outreach.
August is SMA Awareness month and to kick this off, we would like to showcase a great new, community-focused initiative called "SMA My Way", which brings together the lived experiences of people across the world who live SMA THEIR way!