From SMA Europe we are excited to announce the appointment of Nicole Gusset as our new CEO.

Nicole Gusset has extensive experience working alongside SMA Community. Nicole’s first-born daughter Victoria was diagnosed with SMA Type II in 2011. As a result of this, in 2012, Nicole founded the patient organisation SMA Schweiz. She has been appointed as the President of SMA Europe since 2021 and now, will be holding the position of CEO in SMA Europe.

2022 brought us many challenges and opportunities and we could not be more grateful for all the support we have received to approach those.

It would not be possible without the SMA Community who accompany us at each step of this adventure. We believe that, together, we can have a real impact and achieve sustainable change.

We are pleased to share with you the latest community statement issued by Roche that gives an interesting overview of last year's achievements.

Please read the latest CRA report on newborn screening in Europe.