SMA Newsroom

"The power of collaboration". Rarity Life Magazine

"The power of collaboration." Rarity Life Magazine

We are delighted to share with you the latest article published by Rarity Life magazine.

New publication at Rarity Life magazine!

Real-life Stories on OdySMA

<span style="color: rgba(0, 0, 0, 0.87); font-family: Nunito, webfontregular, -apple-system, 'Segoe UI', Roboto, Helvetica, Arial, sans-serif, 'Apple Color Emoji', 'Segoe UI Emoji', system-ui; font-size: 16px; background-color: #ffffff;">While stabilising treatment for SMA is available, European-wide access is not.&nbsp;<br style="background-repeat: no-repeat; box-sizing: border-box; padding: 0px; margin: 0px; --tw-border-opacity: 1; --tw-shadow: 0 0 #0000; --tw-ring-inset: var(--tw-empty, ); --tw-ring-offset-width: 0px; --tw-ring-offset-color: #fff; --tw-ring-color: rgba(59, 130, 246, .5); --tw-ring-offset-shadow: 0 0 #0000; --tw-ring-shadow: 0 0 #0000; color: rgba(0, 0, 0, 0.87); font-family: Nunito, webfontregular, -apple-system, 'Segoe UI', Roboto, Helvetica, Arial, sans-serif, 'Apple Color Emoji', 'Segoe UI Emoji', system-ui; font-size: 16px; background-color: #ffffff; border: 0px solid rgba(237,242,247,var(--tw-border-opacity));" /><br style="background-repeat: no-repeat; box-sizing: border-box; padding: 0px; margin: 0px; --tw-border-opacity: 1; --tw-shadow: 0 0 #0000; --tw-ring-inset: var(--tw-empty, ); --tw-ring-offset-width: 0px; --tw-ring-offset-color: #fff; --tw-ring-color: rgba(59, 130, 246, .5); --tw-ring-offset-shadow: 0 0 #0000; --tw-ring-shadow: 0 0 #0000; color: rgba(0, 0, 0, 0.87); font-family: Nunito, webfontregular, -apple-system, 'Segoe UI', Roboto, Helvetica, Arial, sans-serif, 'Apple Color Emoji', 'Segoe UI Emoji', system-ui; font-size: 16px; background-color: #ffffff; border: 0px solid rgba(237,242,247,var(--tw-border-opacity));" /><span style="color: rgba(0, 0, 0, 0.87); font-family: Nunito, webfontregular, -apple-system, 'Segoe UI', Roboto, Helvetica, Arial, sans-serif, 'Apple Color Emoji', 'Segoe UI Emoji', system-ui; font-size: 16px; background-color: #ffffff;">Meet Jana, Julia and Nataliia to understand how access to treatment and care, can impact the lives of people living with SMA!

New Real-life Stories on OdySMA! 

Full publication

We are delighted to invite you to read the latest Digital Spotlight on Spinal Muscular Atrophy by Rare Revolution Magazine.&nbsp;

New publication: Spinal Muscular Atrophy. Digital Spotlight by Rare Revolution Magazine.

<span style="color: rgba(0, 0, 0, 0.87); font-family: Nunito, webfontregular, -apple-system, 'Segoe UI', Roboto, Helvetica, Arial, sans-serif, 'Apple Color Emoji', 'Segoe UI Emoji', system-ui; font-size: 16px; background-color: #ffffff;">Today, on Rare Disease Day 2024, we are very excited to launch: "Care for adults living with SMA in Europe: a benchmarking report."<br style="background-repeat: no-repeat; box-sizing: border-box; padding: 0px; margin: 0px; --tw-border-opacity: 1; --tw-shadow: 0 0 #0000; --tw-ring-inset: var(--tw-empty, ); --tw-ring-offset-width: 0px; --tw-ring-offset-color: #fff; --tw-ring-color: rgba(59, 130, 246, .5); --tw-ring-offset-shadow: 0 0 #0000; --tw-ring-shadow: 0 0 #0000; color: rgba(0, 0, 0, 0.87); font-family: Nunito, webfontregular, -apple-system, 'Segoe UI', Roboto, Helvetica, Arial, sans-serif, 'Apple Color Emoji', 'Segoe UI Emoji', system-ui; font-size: 16px; background-color: #ffffff; border: 0px solid rgba(237,242,247,var(--tw-border-opacity));" /><br style="background-repeat: no-repeat; box-sizing: border-box; padding: 0px; margin: 0px; --tw-border-opacity: 1; --tw-shadow: 0 0 #0000; --tw-ring-inset: var(--tw-empty, ); --tw-ring-offset-width: 0px; --tw-ring-offset-color: #fff; --tw-ring-color: rgba(59, 130, 246, .5); --tw-ring-offset-shadow: 0 0 #0000; --tw-ring-shadow: 0 0 #0000; color: rgba(0, 0, 0, 0.87); font-family: Nunito, webfontregular, -apple-system, 'Segoe UI', Roboto, Helvetica, Arial, sans-serif, 'Apple Color Emoji', 'Segoe UI Emoji', system-ui; font-size: 16px; background-color: #ffffff; border: 0px solid rgba(237,242,247,var(--tw-border-opacity));" />

SMA Newsroom

New publication at Rarity Life magazine!

New Real-life Stories on OdySMA!

New publication: Spinal Muscular Atrophy. Digital Spotlight by Rare Revolution Magazine.

Today we launch "Care for adults living with SMA in Europe: a benchmarking report!

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