SMA Newsroom

ResearchTreatmentsOdySMAFeb 1, 2023

OdySMA goes live!

Today we want to celebrate with you the official launch of our OdySMA project. OdySMA is an initiative that aims at one and only goal: that no one is left behind in the access to treatment journey.

OdySMA is a dynamic tool that we are using to create an SMA atlas that visualises systematically collected data to illustrate access pathways. The goal is to reveal the 'quest to access' of people living with SMA by mapping, visualising and centralising knowledge and data around access issues.

 

OdySMASep 20, 2022

Laura Gumbert, our OdySMA Project Manager, selected as a recipient of the ISPOR Patient Representative Conference Grant.

Laura Gumbert, our OdySMA Project Manager, has been selected as a recipient of the ISPOR Patient Representative Conference Grant for Virtual ISPOR Europe 2022.

OdySMAApr 8, 2022

OdySMA – a quest to access – Teaser Website goes live!

We are happy to announce, that today the teaser of our OdySMA project goes live.

OdySMA is an initiative to reveal the “quest to access” of people living with SMA by mapping, visualising and centralising knowledge and data around access issues.