SMA Newsroom

AdvocacyOdySMADec 18, 2024

SMA News Today latest article: "SMA Europe inviting patients to talk of how treatment has changed life."

We're excited to announce that SMA News Today has featured our OdySMA real-life stories initiative, as part of their latest publication!

OdySMAOct 18, 2024

OdySMA Real-Life Stories' presentation at Brown University

Last Wednesday, 16 of October, Alice Larotonda and Laura Gumbert, on behalf of SMA Europe, presented OdySMA Real-Life Stories. 

AdvocacyOdySMAMay 21, 2024

New Real-life Stories on OdySMA!

While stabilising treatment for SMA is available, European-wide access is not. 

Meet Jana, Julia and Nataliia to understand how access to treatment and care, can impact the lives of people living with SMA!