SMA Newsroom

Background and Objectives of the publication.

Spinal muscular atrophy (SMA) is a progressive neuromuscular disorder associated with continuous motor function loss and complications, such as scoliosis and contractures. Understanding the natural history of SMA is key to demonstrating the long-term outcomes of SMA treatments. This study reviews the natural history of motor function, scoliosis, and contractures in patients with SMA.

We are pleased to share the latest community update from Roche with several topics that are relevant to our SMA Community.

How does caring for a child with SMA impact the lives of their parents? What influences the parents’ well-being, both in a positive and negative way?

Have you ever wondered how the accessibility of your environment, your treatment status, or your sleep quality impact the way you are feeling? Why are some days easier than others? Why are some moments of the day or week more challenging?