SMAcademy

SMAcademy is a SMA Europe capacity building initiative for patient advocates in SMA. SMAcademy provides patient advocates with tools to amplify their efficacy and impact when advocating for a better life for people living with SMA.
Co-create. Peer exchange. Expert opinion.
Patient advocates need knowledge across areas of expertise, from understanding SMA to medicine development, regulatory processes, policy, and access. They also need a vast skillset to bring people together, lobby with key stakeholders, and increase the impact of their organisations. At the same time, patient advocates also have a wealth of hands-on and first-hand experience advocating and living with SMA that makes them invaluable experts in the field.
Through a variety of learning opportunities, SMAcademy provides a global platform for patient advocates to:
Learn Together. Teach each other.
SMAcademy Advisory Board
- Charlotte Lilien
Researcher, Pediatrics Research, Oxford University - Jan Geissler
CEO and Patient Advocate, WECAN/Patvocates - Melissa Bowerman
Researcher, Keele University School of Medicine - Moumita Ghosh
Founder/Director of Event and Family Support, CureSMA India - Eva Stumpe
DGM/Delegate at SMA Europe; SMA Europe Treasurer - Dana Mierlut
Patient Advocate, Communications Working Group, SMA Europe - Jana Popova
SMA Europe, SMAcademy