SMAcademy
SMAcademy is a SMA Europe capacity building initiative for patient advocates in SMA. SMAcademy provides patient advocates with tools to amplify their efficacy and impact when advocating for a better life for people living with SMA.
Co-create. Peer exchange. Expert opinion.
Patient advocates need knowledge across areas of expertise, from understanding SMA to medicine development, regulatory processes, policy, and access. They also need a vast skillset to bring people together, lobby with key stakeholders, and increase the impact of their organisations. At the same time, patient advocates also have a wealth of hands-on and first-hand experience advocating and living with SMA that makes them invaluable experts in the field.
Through a variety of learning opportunities, SMAcademy provides a global platform for patient advocates to:
Learn Together. Teach each other.
SMAcademy Advisory Board
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Charlotte Lilien
Senior Paediatric Research Physiotherapist at MDUK Oxford University Neuromuscular Center -
Jan Geissler
Patient advocate and patient education expert, WECAN Academy, Patvocates -
Melissa Bowerman
Professor of Neuromuscular & Skeletal Disorders, Keele University School of Medicine; SMA Europe Scientific Advisory Board member. -
Moumita Ghosh
Patient advocate, CureSMA India -
Eva Stumpe
Board member at SMA Europe -
Jana Popova
Patient education expert, EUPATI