SMA Newsroom

Last Wednesday, 16 of October, Alice Larotonda and Laura Gumbert, on behalf of SMA Europe, presented OdySMA Real-Life Stories. 

We are delighted to invite you to read the latest features from SMA News Today and Rare Revolution Magazine, showcasing our documentary that aims to raise awareness about the importance of research in Spinal Muscular Atrophy.

We are happy to share the latest Community Statement issued by Biogen about the Phase 2/3 DEVOTE study evaluating the safety and efficacy of a higher dose regimen of nusinersen for the treatment of spinal muscular atrophy (SMA).

We are thrilled to announce our collaboration with EUPATI, an organisation committed to educating and empowering patients and their advocates.