SMA Newsroom

ResearchApr 29, 2022

New risdiplam data shows long-term improvement in babies with Type 1 SMA

The latest data from the FIREFISH study of risdiplam was presented at the 14th European Paediatric Neurology Society (EPNS) Congress.

Ukraine Apr 14, 2022

Update on Biogen's support to Ukrainian refugees

Biogen has provided us with a community statement to update our community on its work to support Ukrainian refugees, including those living with SMA.

OdySMAApr 8, 2022

OdySMA – a quest to access – Teaser Website goes live!

We are happy to announce, that today the teaser of our OdySMA project goes live.

OdySMA is an initiative to reveal the “quest to access” of people living with SMA by mapping, visualising and centralising knowledge and data around access issues.