News | SMA Europe

The purpose of SMA Europe is to provide a framework to stimulate collaboration and accelerate translational research pathways in SMA and promote patient care.

  1. A New Team to Deliver our Ambitious New Strategy

    SMA Europe announces a series of appointments to deliver the ambitious strategy announced earlier this summer. This new strategy consists of 5 pillars of activity: Research; Therapy & Care; Health Care Systems, Policy & Access; Capacity Building; Communications and Outreach. Raquel Castro joins us as Senior Operations Manager to run SMA Europe’s secretariat, develop processes […]


  2. European Policy & Access Tracker for SMA launched today

    Charles River Associates (CRA) conducted a comparative assessment of the policy and access landscape for people living with SMA across 23 European countries. The project has been funded by Biogen and implemented in collaboration with us. The development of the policy and access analysis builds on a secondary desk research conducted between November 2020 and […]


  3. SMA My Way: stories on topics that matter most

    August is SMA Awareness month and to kick this off, we would like to showcase a great new, community-focused initiative called “SMA My Way“, which brings together the lived experiences of people across the world who live SMA THEIR way! This initiative was born as a result of a need highlighted by people living with […]