The purpose of SMA Europe is to provide a framework to stimulate collaboration and accelerate translational research pathways in SMA and promote patient care.

  1. SMA Europe held its bi-annual meeting in Berlin

    SMA Europe held its bi-annual meeting in BerlinSMA Europe held its bi-annual meeting in Berlin on 13th and 14th October 17, kindly hosted by Initiative SMA, an initiative of the German neuromuscular organisation, Deutsche Gesellschaft für Muskelkranke (DGM).

    A number of topics were discussed, from the availability and scope of Spinraza™ reimbursement across different European countries, to SMA Europe’s International Scientific Congress for SMA and patient advocacy initiatives. Representatives of Avexis, Biogen, Novartis and Roche were also present to discuss their respective clinical trials and the role SMA Europe can play to ensure their successful delivery.

    In addition, SMA Europe was delighted to formally welcome our newest members, Asociatia SMA Care from Romania, represented by Claudia Dumitru, FSMA á Íslandi from Iceland, represented by Ásthildur Guðmundsdóttir and SMA Family Foundation Russia, represented by Olga Germanenko.